Thursday, December 27, 2018

16-Month-Old Boy Needs Surgery for Rare Condition that Caused His Tongue to Double in Size

Just 16 months old, Baker Roth has spent much of his life in the hospital. The toddler was born with a rare condition called Beckwith-Wiedemann Syndrome, which causes parts of the body to grow at faster rates — and frequently leads to cancerous and noncancerous tumors.

Because of his condition, Roth developed hepatoblastoma, a rare childhood liver cancer. At 10 months old he had to undergo chemotherapy and surgery to remove the cancerous tumor in his liver. Diagnosed in July, he was in remission by October.

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“Thank you all so much for the continued prayers, love and support,” his mom, Faith, wrote on the GoFundMe page the family set up to help with his extensive medical bills. “We are going to enjoy a week of freedom, and then check back in for our maintenance chemo. We will have two rounds [of chemo] then [a] scan and then we will be ringing that cancer free bell!!!”

Baker Roth

Baker Roth/GoFundMe

In early December, Faith said that Baker was in remission. Unfortunately, two days before Christmas their family got news that Baker’s tumor markers are up, which could mean the cancer is back. Faith said he would undergo testing after the holiday to assess the issue.

“Unfortunately we got that phone call you don’t want to get after getting our labs done last week,” she wrote on Sunday. “We are believing that it could possibly be liver regeneration causing Baker’s tumor marker to go up more than it should.”

Baker also has more surgery in his future — because of Beckwith-Wiedemann Syndrome, his tongue is double the normal size and restricts Baker from speaking clearly or eating solid foods. He has a trach tube in his throat to help him breathe, but his parents hope that tongue reduction surgery will solve the issue.

Faith explained in an update on their GoFundMe page in early December that Baker has a long way to go.

“We still have a tongue reduction in January, hospitalization to have the trach removed, mickey button removal [for a feeding tube] and one last abdominal surgery in the near future,” she said.

Baker Roth

Baker Roth/GoFundMe

But Faith said that she’s feeling hopeful.

“We are so appreciative of all of our family and friends — some we know, and some whom we don’t know — for seeing us through this difficult time of our lives,” she said. “There is a light at the end of the tunnel, however we still have a little ways to go. Baker is strong as ever.”

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This article originally appeared on People.com



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Chances are, you've probably started to notice cannabidiol hemp oil, or CBD hemp oil, popping up as an ingredient in beauty products such as body lotion and facial oil. While it's definitely the buzzy beauty ingredient of the moment, a fad this is not: CBD-infused beauty products have been growing in popularity, with entire brands now dedicated to the healing properties CBD hemp oil has when used topically. But there are still a lot of misconceptions about CBD-infused beauty products, so we went to the experts to get some answers.

First, the big question you're wondering: CBD is non-psychoactive, meaning you're not going to get high from using any of these products. CBD hemp oil is sourced from hemp with lower levels of THC than marijuana, (which is responsible for altered mental state) and high levels of CBD. It's also a rich source of fatty acids and other nutrients that benefit your skin, says Francesca Fusco, MD, a dermatologist based in New York City. "Studies have shown it can improve reduced barrier function, improve hydration, minimize moisture loss, and decrease inflammation," she explains.

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The best CBD oil beauty products

Skincare brands are catching on to the benefits. If you're looking for something to address dryness, CBD for Life Pure CBD Hand and Body Massage Lotion ($22; cbdlife.us) is an all-star. On your face, try Mad Hippie Antioxidant Facial Oil ($25; amazon.com), which contains hemp seed extract for a healthy glow along with other skin-loving ingredients like argan oil and vitamin E. The popular skincare brand Kiehl's even recently announced that they will be launching a Cannabis Sativa Seed Oil Herbal Concentrate early next year to help fight skin imperfections like redness ($49, available for preorder now on kiehls.com).

If you're feeling sore after a workout or have muscle aches, try Lord Jones Pure CBD Pain & Wellness Formula Body Lotion ($50; sephora.com) or soak in a relaxing bath with Life Elements Bliss Bath Balm ($14; lifeelements.com).

You can also find it in makeup products, such as Milk Makeup KUSH High Volume Mascara ($24; sephora.com); because cannabis is so rich in omega fatty acids, it makes for a super conditioning ingredient in mascara. There's even a hair care line called EMERA that's packed with CBD oil: We love the EMERA Nourishing CBD Detangler Plus ($25; emerahair.com).

Many of these products are geared towards CBD oil's anti-inflammatory benefits because "the primary receptor for CBD (CB2) is found on immune cells," which is where inflammation takes place, notes Adam Friedman, MD, a dermatologist in Washington D.C. This is major, because many skin conditions are connected to inflammation, which is why there are so many conversations about the power of CBD in the beauty industry right now.

More research on CBD oil and its benefits is needed, but Dr. Friedman points out that the ingredient's ability to regulate cell growth, reduce inflammation, and stimulate important fats in the skin and sebaceous glands could help inform treatments for other skin issues, such as dry skin, psoriasis, and eczema.

According to Dr. Friedman, cannabis beauty products are certainly worth a try. He reiterates that the benefits are "strongly supported by several pilot studies," not to mention that many users swear by them.

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